Tuesday, June 09, 2009

The MRI Results

I received a phone call from my Neurologist this evening. Seems the results of my MRI are in. And let's just say I would have been less surprised to hear the MRI technicians had been laughing at me because I kept falling asleep and snoring despite their repeated attempts to try and stay awake so I could hold still. (In my defense, it was 8am and all the medication they have me on makes me really sleepy... Just not at night.)

Yes, I'm stalling.

I have a brain lesion.

This could mean nothing significant.

This could mean everything significant.

Since I'm writing this on my phone, I can't add any links. But if you Google "Brain Lesion" you would find out that it means an area of the brain that appears abnormal. It can be caused by infection, disease, stroke, etc.

Right now the cause of my lesion (that sounds oddly possessive... Maybe I should name it) is unknown. So they are setting up two additional appointments for me.

The first is a Cardiology appointment. This is because the lesion could be the result of a stroke (or in my case a mini stroke) which is ultimately caused by a hole in the heart. I'm just going to go out on a limb here and say that seeing as how my grandma had a hole in her heart, Noah had heart issues, and obviously its in the genes because Beckham has heart issues too, then this probably isn't stretching things too far. And because a Cardiologist is the ONLY specialist I think I haven't seen then it seems this might be even more likely.

The next appointment is for a Spinal Tap. This would be to look for Multiple Sclerosis. Ugh. The good news on this one is that I have one lesion. MS usually presents with many. However, I do have symptoms and one lesion is one more than you want. This test can come back positive, negative, and inconclusive (meaning it has some positives but isn't screaming positive in which case they will send me to the MS center for more testing).

So that's it. Well, I guess there is one other thing.

Before I got the news today (and even after) I had decided to nix all the meds I have been put on. I figure that I'll never figure out what's wrong if I'm all these medications that have side-effects. In all complete honesty, 100% of my symptoms could be side-effects of all the rotten medication I've been put on. The real yucky thing though is that coming off it is going to be hard. And by hard I mean kill-me-now-awful! It's not the kind of stuff you just stop taking. It has to be tapered down and withdrawal is worse than rotten. If I thought things had been rough before I have a feeling the next two months are gonna be a ride.

Alright. I'm done. If you hate reading these "sickly" posts even half as much as I hate writing them then I'm going to have to start bribing you to read my blog.

Thank you for supporting me though. It means more than you know. The love, support, prayers, and outreach of all of you has given me such comfort and strength. I am very grateful and humbled.



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8 comments:

  1. Oh Crystal, I hope and pray the decide that it's something NON-significant. You are such a strong person and I admire you for that! I'm impressed you are gonna try and get off your medications. With everything you are dealing with, that is one amazing task ahead! I'll pray things go smoothly. Please keep me updated! :)

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  2. Ditto to Jen Let us know what we can do.

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  3. Sorry to hear your results on your MRI. We will keep you in our prayers and hope for the NON-significant also! Keep your chin up!

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  4. I'm glad you are one step closer to figuring it all out. I will pray for the best. You are such a strong woman!

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  5. Crystal,

    My gut tells me this is "nothing!" I am thinking of you, your family and so sad and so sorry you feel so incredibly lousy and nothing helps and there are no answers. Please let me know if i can be of any help at all. I am looking forward to seeing you. Happy Birthday Noah!!! OMG 2!!!!!!!

    All my love,
    alison

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  6. Sorry to hear this, Crystal. I'll keep you in my prayers. Hang in there.

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  7. Well, it's not the best news, but at least it's an answer. You'll have to let me know how the cardiology appointment goes and if you have a PFO. In the four and a half years I've been working with the heart team now, I am amazed at how many people have one and have no clue it was even there!

    My prayers are still with you! Please holler if you need anything at all!

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  8. Hey beautiful...any new news?

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Thank you for taking the time to share your thoughts with me.